Sunday, July 17, 2011

UPDATE - Claigh is well on his way to healing. . .

As some of you may be aware, my husband Claigh serves as a member of the Stake High Council of the Ammon West Stake High Council of the Ammon West Stake in Idaho Falls. The Church of Jesus Christ of Latter-day Saints is organized into congregations known as wards or for smaller congregations, branches. Groups of wards and branches are organized into what we call Stakes. Isaiah 54:2

I have other places which I will appoint unto them, and they shall be called stakes, for the curtains or the strength of Zion.
Doctrine and Covenants 101:21

Our Stake is lead by a Presidency who is supported by a High Council of twelve men. In the church, the priesthood brethren are organized into quorums or groups that work together to support the work of branches, wards, stakes, areas and the general church. These quorums do much to serve and form a tremendous brotherhood for the blessing of the members of God's kingdom here on earth as well as for many throughout the world of all faiths those without any faith to meet various needs - both temporal and spiritual.

Within the congregational family, we are assigned Home Teachers. Two men are assigned to work together to enable each and every family unit within the congregation to have someone to watch over them. These under-shepherds are able to focus attention on specific needs of individual members.

On our drive home from the Urgent Care Center in Rexburg on the 8th, I called our home teachers to let them know of the accident. That evening Gary and Bob were there to anoint Claigh with oil and give him a blessing of endurance and healing. Gary Meikle, one of our home teachers, is maintaining a fight with incurable lung cancer. He and his wife Jean are remarkable to say the least and have blessed us with such a sense of the possible when faced with the impossible. Gary serves with such determination and an inner strength form the Spirit that over comes the limitations of his physical body. The blessing brought comfort and peace.

On Sunday, just 2 days following Claigh's cave-fall, he rose early for his 7:30 a.m. High Council Meeting. I had had a difficult night and was sound asleep. As is in his generous nature, he did not waken me but attempted to get it together himself. He managed somehow to shave and was able to pull a shirt over his head, but there was no way for him to tie his shoes. Part way through the meeting, one of Claigh's fellow High Councilmen, Brother Jordan Jardine, noticed the untied shoes and asked, "Claigh, would you like me to tie your shoes for you?"

It touched Claigh's heart that Brother Jardine had even noticed something so small. What a simple expression of God's love for each and every one of us.

We are grateful!
Do small things with great love.
Mother Teresa

Later that afternoon, we enjoyed a relaxed dinner with the Meikles. They continue to bless our lives.

Monday afternoon, as I was leaving the house to get Claigh to the doctor for the casting of his broken radius, our dear home teaching friend from down the street, Bob Buchmiller, walked into our yard with a weed trimmer in hand. He had come to do our lawn for us. We had felt we could go another week but he insisted that it looked like it could get a little shaggy and he wanted to do it for us. He spent hours and left us in good shape for another two weeks. Bob and his wife Jackie have been dear friends ever since we moved here. During one of my lowest times with the chemo treatments, Jackie came and sat with me for a few hours one afternoon. Just her company when I myself wasn't good company at all made such a difference for me.

Today, one week later, Claigh is much improved. The pain in his sternum and left forearm have subsided greatly. He still wears a brace on his left arm to protect the healing tendons and muscles but has much greater use of his fingers. He is able to tie his shoes and button buttons again (albeit very slowly.) His leg abrasions are coming along. They were not too serious but cause some discomfort with the itching and healing process. Claigh does have annoyance with the cast on his right wrist but that will come to an end soon thanks to the amazing ability of the body to heal. He has been able to purchase a computer program that turns dictation into the written word so he is able to keep up his files for work as it will be some time before he is typing again. He thinks he will have tremendous use for this long term as he spends some time in the car traveling to visit with those he counsels.

Our family has been greatly blessed by Claigh's diligent efforts throughout the years to serve God in every way he can by serving God's children. It is true that you cannot out give our loving Heavenly Father nor even come close. His mercy and kindness never fails! He is a faithful God and will support our meager capacities to give and love in His way. There are many good souls who share this love for God and his children. We so appreciate the outpouring of your love in our behalf through words and actions. Your prayers for us are especially appreciated and have been answered in wondrous ways.

“God does notice us, and he watches over us. But it is usually through another mortal that he meets our needs. Therefore, it is vital that we serve each other in the kingdom.”
President Spencer W. Kimball

Tuesday, July 12, 2011

Our July 8th Fun and Not So Fun Adventure . . .

Our first weeks of July were such a delight with visits from the Sevy's, Baileys and Stalcups! How we love our wonderful sons-in-law and their thoughtful sacrifices to make these visits possible. I will write more of the time we had together later but due to requests, at this time I write of our July 8th experience:

Carey and kids had just left for Washington State and we had planned a day with the Sevy's and Stalcups to explore a lava tube cave north of the Rexburg area. It is known as the Civil Defense Cave as it was designated a shelter in case of missile attack during the cold war. It is so far from anything other than perhaps wolves and coyotes, I can't imagine who on earth would ever get to it as a shelter :D

At any rate, when we finally made the 25 minute drive over the last four mile stretch (a very rough red soil path they call a road), and arrived at the cave entrance, I knew we were definitely unprepared for the experience. Apparently there is a very interesting 1 1/2 mile hike through the tube that is very easily negotiable, however, the entrance is another matter altogether. I would never have made 1/2 a mile let alone the full length of the walk. I am just slowly regaining strength. I had concern as we saw the cave entrance. The rocky jags and gaps were really rough. I said "No toddlers, 8 month pregnant women or grandmothers on this one."

Surprise, surprise - no one listened to me as they all scrambled for the adventure ahead. Unfortunately, Claigh was not yet down to the entrance to back me up or hear my concern. Ash was already most of the way in when he got there and had one last move from a large boulder to another to be past the worst of the worst. There was about a three foot gap between the boulders. I couldn't see that area, just the tops of the bodies as they stood on the first of those two rocks.

As Claigh approached her, she reached out for his hands and said, "Help me get down." He took her hands, still unsure of the situation and without having really surveyed what was happening. As she went down, she missed the mark and fell a couple of feet further than expected. This pulled Claigh forward over the top of her. He did manage to have her settled before the forward motion took over for him. All I could see was Claigh's head go down first and his feet fly in the air behind him. It had the look of a long body dive into a pool. The screams and the sight were truly terrifying. While I could see him sail forward, where he was headed was hidden from my view. I knew I could lose him. For all I knew, he was flying head first into a jagged field of rock. As it turned out, he was going across the chasm onto a very large and quite smooth boulder that was angled up at about forty-five degrees.

Claigh said he had a quick thought, "Should I roll?" but knew instantly it would be best to go hands first and do all he could to keep his head up. He caught himself in push up position but the fall was pretty hard needless to say. (Thank goodness for his three to four workouts with weights every week!) He did bruise his sternum and was in extreme pain in both of his wrists and forearms. His right leg was pretty scraped up as well. It took him quite sometime before he could talk. I would say it was at least twenty five minutes before I knew he was "Okay" and they could help him up to get out of the cave.

Our Will (Ash's four year old) was pretty upset as he was right there and didn't like the blood on Grandpa's leg. He said, "I hate caves." I said, "Oh Will, caves are fun to explore. We just sometimes take a fall." I reminded him how when he learned to ride his two wheeler in the spring he sometimes fell and hurt his knee. He quickly pulled his shorts up and showed me his latest scar. We talked about how much he liked to ride his bike and that the few hurts were just a part of learning. I assured him that falls are a part of life. They can happen in a cave. They can happen at home. We just get back up and our bodies heal and we try again.

I wanted to get right back to town which would take us a good 30-40 minutes but everyone else decided a bit of a surface hike was in order! Trying to stay sane, I enjoyed walking close to the van to explore the miniature wild flowers that were tucked into the sage. With the extensive rain and snow pack this year the flowers are plentiful but you have to really look for them as they are very small and hidden. I found over ten different varieties but honestly I just wanted to be in the van on the way to x-ray equipment! (It's a woman thing.)

As we headed back into town, I began to make calls to find out which facilities were on our insurance while Claigh insisted he didn't need to see a doctor. (It's a man thing!)

Claigh's right wrist started to swell and he began to be agreeable to the fact that we were headed for x-rays. We got to Rexburg, switched into our car to head for the Urgent Care Center, and sent the rest on their way to the Taco Bus and Splash Park.

When the doctor first looked at the X-Rays, he thought both wrists were broken. They sent them to Idaho Falls for a special read by a radiologist who said no to the left wrist and definitely to the right. Claigh was splinted to stabilize the right wrist and allow for the swelling to go down. He did get a prescription for Lori-tab but we didn't have to fill it as he was able to manage the pain with Ibuprofen and aspirin.

Monday, we saw our family doctor for the casting of the right wrist. The break is in his radius just above his thumb joint.

Today, Tuesday the 12th, Claigh is sporting a blue cast. He has some pain in his sternum, his left wrist has improved remarkably from it's sprained condition and his leg scrapes are well on their way to full mend.

Claigh feels strongly that divine intervention kept his head up from injury. He has no strain in his neck or shoulder or back. With the upward angle of the rock he landed on, he can't imagine how he alone could have kept his head safe with a three foot downward trajectory onto an upward slanting boulder. We are very, very grateful!

Ashlee only suffered a very minor scrape under her one arm that didn't even draw blood. The baby is doing wonderfully and very anticipated. The Stalcup insurance doesn't cover ultra-sounds so they do not know if we are having a boy or girl. We are prepared for either just like when we had our children years ago. Ashlee is due August 21st but each of her children have been born 2 weeks early so it could be the 7th! Imagine that!!

August 7th is the day that Kes and Grandpa celebrate their birthdays and this year Kes is eight years old. We will gather at the reservoir in Soda Springs that Sabbath day for her baptism. Ashlee and Steve are hoping the baby will hold off until evening at least but as we all know babies have their own timing. She could actually deliver closer to her due date this time.

Life is very very good!

Thursday, June 30, 2011

Long Overdue Update . . .

This past few months has certainly presented me with challenges in regards to the therapy I am undergoing with the autoimmune disorder. The Chemo really takes me down and I find I am mostly in bed for the full four weeks I am on it. It makes me very weak and exhausted. My hair comes out by the handfuls every day in spite of my efforts to be careful. On the sides I was down to a few long strands on top covering a bit of fluff underneath and I had small hairs from breakage all over my head. Having such thick and coarse hair all of my life, this has been quite a shock to me. The new hair is white fluff like the down of a goose and it is very difficult to manage.

I am now completing my first Prednisone week for this round of treatment. As always, I start this part of the therapy with three days of infusion of 1000 mg of Solumedrol (IV Prednisone)in the infusion lab at the hospital. While on Chemo, I need weekly blood draws and labs. The best part of the Prednisone months is a break from all of that. I now am on 40 mg of Prednisone a day along with all of the other meds and necessary supplements. Can I just say I am so tired of taking pills? I change medications around the 21st of each month. The change over week from daily Prednisone to daily chemo is the toughest! Hopefully July 21st will be my last experience there!

It feels so good to be off of the Chemo for a bit. Melatonin has increased my ability to sleep in the night overcoming the wakefulness of the Prednisone therapy, and I actually have some energy. This is a real emotional boost as I am able to be up and doing! I sense the atrophy in my muscles (especially my legs) but the strength I have blesses me to be back into the joy of work and some accomplishment.

Our computer crashed last week loosing my completed address for Sunday. Claigh and I speak at a different congregation each month as a result of our church assignments. If we do our part, our Father Heaven sees us through and that is just what He did for me. I rose early Sunday morning and began again. A computer screen may go blank, the the sense of heart that fuels a testimony is ever there. The meeting lifted and inspired. Claigh's testimony was powerful. The youth speakers were well prepared - the music beautiful. Don't you just love the gospel of Jesus Christ?

Yesterday was a big day for me. - I had to face facts and have my hair cut very short. I sure do not like it and feel guilty for the sadness and loss I am experiencing. I miss myself. I miss people. I told Claigh that this is how I thought I would look at eighty. What would I do without his love and devotion through these difficulties? How could I manage without the sure knowledge of the love and mindfulness of my Heavenly Father and his Son Jesus? The Spirit guides me and inspires me to greater faith and testimony.

With my reemerging strength, I have spent two sessions in the yard planting flowers and cleaning up the beds. Last evening we started late as we went to purchase a camera for Claigh's birthday. (Ours broke the day before Alyssa's wedding. We decided not to wait for his August celebration of life as we want pictures of the grand kids coming for a visit soon.) Back to the yard. - It is suffering from my neglect but Claigh again has been wonderful. With all of his usual business and dealing with my situation, he has managed to keep things looking pretty good. That man is amazing!

The air was crisp and clean last night - the soil moist in my hands - the flowers in shock due to the fact that I hadn't watered them before I began my trek to the beauty parlor. I am in hopes they will make it but the reality of the final arrival of summer may make it a bit too hot for them. We also planted a Peony last week that is looking pretty wind beaten and so we will move it hopefully tonight. I miss my large flowerbeds in Virginia! Idaho Falls presents quite a challenge for my green, pink, red, yellow, white, purple, orange thumb :D Claigh and I didn't make it back into the house until 10:30 p.m. It was fantastic for me - perhaps a bit on the late side for Claigh!

As for treatment results? My protein dump has gone from over 18000 to just over 3000. Hooray!! And my cholesterol is down from 550 to 320. Dr. Haderlie is hopeful that we can discontinue the Prednisone/Chemo treatments the end of September. I am right there with him! The longest I will go will be until February.

Many have been supportive through this ordeal. Truly God does watch out for us through the prayers and kindnesses of others. Thank-you so very very much. Honestly, discouragement does get me at times but for the most part I have been keenly aware of the bounteous blessings in my good life. My heart cries out for those I know who are in much greater distress than I can even imagine. It is interesting that once again, guilt floods my soul when I consider the plight of others around me who suffer greatly for loss of health and loved ones. My situation has been difficult but I feel quite taken care of and nurtured through it all. I have been blessed beyond what I deserve.

Monday, March 21, 2011

Cameron and Family - Kidney Donation - March 11, 2011

This Stewart Family photo was taken August 2007.
Some of you have asked "Who is Larissa?" She is the young mom who received Cameron's kidney.

Larissa belongs to the same congregation as Cameron and Collins. Her kidneys were in complete failure and she was facing dialysis. You can imagine what this would be for a young mom. None of her family was a match. Cam and Collins had a strong sense when praying for Larissa's healing, that perhaps Cameron would be a match. The thoughts persisted.

Soon Cameron began the process of health evaluation and matching procedures. This took a great deal of time. During this period, Cam and Collins began to prepare for the eventuality that their inspiration would prove accurate. Cameron and her wonderful business partner Tracy, run three preschool classes in a school room in Cameron's home. Provisions needed to be made for Cameron's absence from administration duties and teaching. More importantly, the needs of their own four children still at home had to be addressed. Every thing kept falling into place regarding those concerns and each new concern that arose. Once it was determined that Cameron and Larissa were a perfect match, things moved very quickly. This is why so few in the family knew about it ahead of time. Those in the immediate family were dealing with things in very short order. Cameron says there are many others who she believes would have done the same thing. She was just THE one who do it because of the miracle of the match.

As a mom myself and knowing what it is to raise a family, I had concerns about Cameron putting herself in this position. I expressed that but we fall back on the truth that Heavenly Father hears and answers prayers don't we? I grew to have confidence in the decision that Cam and Collins made. God often doesn't answer our prayers in the way we expect and in this case, the answers came so out of the realm of my thinking! It has been tough to miss being there with Cameron at this time but again God provided..

Collins is the 2nd of nine children in his family. His mom is a remarkable woman. She has worked for years and years in the cub scout and scouting program and is a calming and loving influence. The Stewart children and Cameron are well watched over while Collins works. AND the kids love her activity and fun.

Cam and Collins' congregational family is really stepping in with assistance for both of these young women. Meals have been provided and cleaning crews have come in to do whatever they can. Cam and Collins also have great relationships with their neighbors in their little cul-de-sac. They too are involved. Tracy and another teacher they have hired are managing the school while Cameron recovers. There are many who have given what they have to make this beautiful miracle possible. We are the hands of heaven aren't we all? AND now two moms are able to fully care for their children!

Isaac is our little one with some real challenges. He has some disabilities that have been hard to diagnose. There are signs of Aspergers and it seems that this most fits the bill but then again there are ways that it does not fit. He is a brilliant boy, and Cam and Collins have had their hands full dealing with his realities. Interestingly he is very loving and yet during his difficult moments, is a challenge beyond anything else I have experienced. There are times when fear and frustration are just overwhelming to him. This is always true for this child, not something new to this particular stress. Your prayers in his behalf are greatly appreciated.

Isaac's wit is a true joy. We have many fun family stories. Once when they were visiting, he and Grandpa walked the mile to church to help him expend some energy and have a more positive worship experience. It was a perfectly beautiful summer day. As they approached the church doors, it began to hail heavily. As they ran for the doors, Isaac stopped up short and exclaimed, "Oh my heck! What is that white stuff?" He plays a very special part in our family and is deeply loved and appreciated for the perspectives he brings. He is five and doing well in his school with special aide assistance to watch over and keep him safe. With his skills as an escape artist and he can be in serious trouble very quickly for one so vulnerable.

Tristan (Collins son from former marriage) is in college, Jonah is fifteen, Gideon eight, Isaac five and Felicity (alllllllll girl) is three. This is one dear family!

Wednesday, March 16, 2011

Another Week - Family News

First Cameron, My kidney specialist told me that to be the donor of a kidney is a very major surgery and much more challenging to recover from than to recover from the surgery of the recipient. To get the kidney, they have to go in from the front. The kidney is located quite high in the back of the body. The internal stress on her body as they moved everything around to get at the kidney causes tremendous soreness to overcome and heal, let alone the trauma of the actual surgical procedure to disconnect the organ. Dr. Haderlie was one of the doctors consulted by Cameron's doctors to be sure that what I am experiencing is not hereditary. The first picture is of Cameron and the youngest of her five. It was taken this past Christmas. The next picture is the gift of life Cameron gave. The doctor is holding the kidney while the nurse snapped the shot.


Cameron returned home yesterday at noon. Before she left the hospital, she got to see Larissa who had received her kidney. It is hoped that Larissa will be released today. Her creatinine levels are now better than Cameron's! We pray for successful reception of the kidney.

Cameron said the ride home was very rough and exhausting. She sounds as weak as a kitten but is genuinely doing well for the reality of what she is dealing with. Collins and the children are supportive and very good to her. Five year old Isaac is really feeling the stress of having his mother gone for a bit and could use some extra prayers in his behalf. Felicity is still not fully recovered from RSV and pneumonia but she is not contagious or running a fever any more - just some residual lung weakness. Gideon and Jonah peek in to have short visits with their mom which has been very nurturing for her.

Collins' mother Sheila is with the family through the next while. She is wonderful with the children and brings a tremendous calming effect in the home. She is also a master organizer and just a delightful soul. Her smile is beautifully reflected in her eyes which tend to light up a room. What a blessing she is! Cameron also has an incredible support team through her ward family and neighbors and friends.

When Cameron called today, she said she is now feeling some return of strength which strengthens her hopefulness.

Me: Thanks for your patience girls in getting this information. It is just too much to say over and over again AND I had a pretty down day physically when I got home from the doctor yesterday. I was a bit revived last evening and very fortunate to attend my book club with my dear friend Pilar who drove me. I love the club. It is such a diverse group of women with varying views, likes and dislikes. It is intellectually stimulating and there are lots of laughs. - Just what I needed! As the book had been set in Afghanistan, our hostess, Edie served homemade scones and non-caffeine Green Tea. It was wonderful!! And she sent a scone home with me for Claigh, who returned late from Driggs. I am so grateful for Pilar's help in getting me there, up the steps, securely seated for such a delightful evening and safely back home again by 8:30 p.m. The past four days for me have been very difficult and this lent a bit of normalcy to my life. There is nothing like time with a great group of women.

Today was highlighted with a call from a friend who was out and about with her children. She wanted to know if I needed her to pick up anything for me. These are the kind of good souls I am surrounded with. Thanks so much Jeanne. Calls from Cameron, Ashlee and Sara just topped it all off so beautifully. I love my girls!

Medical Update: My doctor's appointment yesterday again left me with deep gratitude for such a diligent and thorough doctor. I can't say enough about that! Again, a few days prior to my visit, he had called his teaching hospital which is on the front lines of the latest and best techniques in treating this immune disorder to clarify our direction and question things that were unusual to the way things have been done in the past. EXCELLENT! What more could you ask. He was completely prepared for "next step instruction" to me, having dates and schedule in place. He writes it all down for me to bring home with me. Every question I have he is thorough in answering. At times he will pause and think through before he responds. I literally feel my prayers in his behalf are answered as he determines a possible solution or has a new thought.

My protein levels on my 24 hour catch were 13,000 grams. I was excited as that was lower than the last 16,000. He smiled and said that is really not an improvement but could be a mere reflection of how much protein I had consumed the proceeding day. He reminded me it is really too soon to see any improvement and told me people get concerned when their protein dump is 300 grams. My cholesterol continues to be over 500 with most of that LDL. I am sorry, I did not get the actual numbers - too much else to take in. My blood pressure continues excellent at I believe 107 over 72. My kidney function continues to be excellent except for the one glitch. There is still no damage and once the chemo and steroids begin taking full effect, the possibility of damage will be arrested for the time.

Dr. Haderlie felt it important to add Statin Drugs to my allergy list. He said the reactions are too dangerous, can cause permanent damage and I should never try them again. We had ended having tried three Statins adding CoQ10 to try and overcome the side effects to no avail. I am tolerating the Zetia very well. When my labs were done a week ago, I had only been on them 1 day so the result is not reflected in those labs. He said the Zetia will not bring things down like the Statins but it is the best we can do.

My right ankle is completely normal and the swelling in my left ankle minimal to where it had been. (I wore regular church shoes Sunday :D) I have very little leg swelling now. On the Statins, the swelling was completely gone for about 4 days, Dr. Haderlie said it is possible the swelling reduction was actually due to the 3 days of Prednisone Infusions I began this whole process with.
The Prednisone has made life very difficult for me. I went a week with only 3 hours sleep in each twenty-four. When I started taking the Ambien, I bumped up to 3 1/2 hours. Needless to say, I have become weaker and weaker due to this. Unlike the Statin side effect, I am very steady on my feet and clear thinking - just extremely weak due to physical exhaustion. I also asked him about the risk of becoming addicted to the Ambien. He said it is possible but as my need is not psychological in nature, his experience has been that as Prednisone effects subside, my need for the Ambien is likely to subside as well.

It is amazing to be extremely fatigued and unable to sleep. In addressing this issue, Dr. Haderlie acknowledged it is a part of the deal. When asked about the anxiety aspects, I told him I really didn't feel anxiety. I genuinely have a sense of peace. However, when there is something that I feel passionately about, I am way over the top intense. I HATE THAT!!!! Claigh, Ashlee and Alyssa have experienced this "intensity" and have been kindly patient with me. I also get teary way to easily.

As we talked, Dr. Haderlie took a pause to think and then offered that sometimes a difficult side effect of the Airprazaam he prescribed is that it knocks people out. He said there are those who just cannot wake up when they take it. We decided it may be a good idea to take it and see if it boosts may ability to sleep. INSPIRED! I took it twice yesterday (I can take it three times a day - just not at the same time as the Ambien.) Last night I slept just 10 minutes shy of 7 hours!!!!!!! What a relief!. I will continue taking the Airprazaam at breakfast and at lunch time. I think it will take some time to regain the rest I have lost but at least I am hopeful this last 1 1/2 weeks before I take a Prednisone break will not be wide eyed and wild. I also have had a less emotional day today. That makes me happy for my family :D

My last Prednisone for this round will be March 23rd. (Happy Birthday Ashlee :D) On the 24th, I begin Chemo-Therapy. I will go off of Prednisone cold turkey. The Prednisone is preparing my body to maximize the chemo's ability to do it's thing.

Dr. Haderlie tells me he feels I have an excellent chance of feeling very good on the chemo. It will be taken three times a day by mouth for 30 days. He said the challenge with chemo is all internal and at that point I will have to have weekly labs. NOT good for my small veins! They use children's needles on me because of the difficulty in getting my blood and in an effort to protect the veins as much as possible. He will monitor my labs each week and call me immediately in if needed. He is going on his first vacation in forever in three weeks and will keep track of what is going on during that time. He made sure I have his cell phone to call if needed. I WILL NOT CALL UNLESS IT IS A MAJOR EMERGENCY! He can count on it. Doctors have wives and children and must be respected for their family needs as far as I am concerned.

On April 23rd, I will begin the heavy dose Prednisone infusions (I can't remember but it is something like 1600 mg.) for three days in a row at the hospital again and then back to 30 days of 40 mg of Prednisone a day. I am not looking forward to that BUT I have such confidence through my prayers that Dr. Haderlie is right on in his treatment plan and I will NOT complain!! I am determined but alas, it isn't easy.

Again, Dr. Haderlie reminded me that this treatment is not a cure but has been effectively used to stop damage to the kidneys, protecting them while the body rights itself. He has a patient he has worked with for three years whose challenges were very similar to mine. Last week she was able to be completely removed from all medications and her body is functioning perfectly. Her kidneys are intact and the immune system has straightened out. I have the advantage of three more years of development of these therapies. HOPE!!!

I now have triple filtered water, and not unusual for me eat lots of organic vegetables and high quality protein. Beans continue to be a genuine source of strength for me. I eat only good fish, antibiotic/hormone free beef, buffalo, and chicken in small servings. My grains are the grains I love best - whole grain and seedy although I do enjoy a piece of Cibatta bread with melted white cheddar every now and then. I do not add salt to anything and have adjusted nicely to that. Good dairy has been critical in managing the extreme hunger pains. I stay away from all simple carbohydrates. They send me into a hunger rage!!! Sometimes a segment of Cadbury's Fruit and Nut bar really gives me a treat and seems to not bother me. A piece of plain cheesecake also seems to set well for a treat.

We have worked an appropriate supplement program for me (I have become such a pill popper - Who'd have thought?) and fine tune it as needed. I am committed to giving my body the best chance to work this through and fight. - Dumb VIRUS!

I love you all so much. Your support is appreciated. Happy Happy Week To You!

Saturday, March 12, 2011

Marching Forward 2011

Cameron has given a great gift. A good friend close to her age was in desperate need of a kidney and none of her family members was a match. Cameron was a match and she determined she was the one to give the gift. The surgery is a major surgery. It appears all prayers were answered with the best of outcomes. Both Cameron and the recipient have come through beautifully. I am so grateful for Cameron's ever supportive husband Collins and for his mother Shelia who is there to care for the children while their mother is in the hospital and recovering. It is difficult to not be where I really want to be. Cameron was thoughtful to call yesterday morning on her way to the hospital and again late last night when she made it out of recovery. It was a comfort to hear her voice.

We are excitedly awaiting our newest little girl. Sara and Jared are such a great parent team. It is a joy to watch their caring and loving nurture of their boys. A girl is really going bring some sparkle to an already delightful family.

Steven had a good visit with Dr. Biddulf and found he needs ACL surgery. This throws a chink into the plans he and Alyssa had to join the USAF this August. With Steven's insurance in Virginia, he and Alyssa will fly "home" as soon as his BYUI trimester ends in April for the surgery and immediate recovery. They will return to Idaho a few days late for the beginning of his last trimester and his continued recovery. With this, Steven will be kept from even applying to the Air Force until at least a full year past the surgery. YOUCH! Life has a way of throwing us some curve balls! It will be exciting to see how the Lord leads them along.

Claigh took Friday off to help me get to an appointment to have my hair cut. With the hair loss and the lack of health, I have felt more and more haggard looking. This is not a good thing for the spirit. After all kind of efforts to do something, I have accepted the fact that short for now is best. The girl gave me a very good and simple cut. It is the cut I had my high school senior pictures taken with. How's that for a blast from the past? I also had her do a color treatment (not changing my hair color at all.) It was a clear treatment she felt would strengthen the hair strands and give some shine. It worked! That makes me quite happy.

We also took Alyssa and met up with Ashlee and the kids in Pocatello, a “meet in the middle” place for us. Ashlee has struggled physically with her pregnancy (due in August) and the "Greg and Will “jinks” have added to the difficulties. They are such great boys but ALL BOY. The two of them can really cook up some trouble. With all of the kids home Fridays through Sunday and pretty much in the house the whole time, the weekends can be very long for her. Steve has been good support, getting the kids into work crews in the evenings to set things straight and getting supper on but those days can be very long for a mom with five just the same. Thankfully, Ashlee's stomach is settling and she is starting to feel better now she is entering her fourth month. The warming weather will help also with the children having more outdoor time. While in Pocatello, Claigh took the kids to a play place for about four hours while I got my hair cut and Ashlee, Alyssa & I did the Costco thing and went out for some Mexican lunch. Ashlee left Pocatello pretty exhausted but at least I hope it was a good break for her. AND hopefully the kids got some good energy out.

The Bailey's are our family in the midst of the storm experiencing a bit of calm. (Don't hold your breath! This is life after all!!) It is good to see so many blessings in the midst of a challenging time. I never cease to be amazed at the love of God that surrounds if we have eyes to see and hearts to feel. We are blessed.

Friday, March 11, 2011

Managing Prednisone Crazies!

I am really struggling with the Prednisone crazies. It is hard to feel your body and soul so revved up and not be able to settle it down. I had two nights of only three hours sleep after two very frantic days. By yesterday I was a bit on the emotional side. Last night I took the narcotic sleeping aid that the doctor prescribed and slept from around 9 p.m. to 5 a.m. It is hard because I woke feeling much more settled but had that 6:30 a.m. Prednisone looming before me. I take Prednisone a.m. and p.m. Two more weeks before I have a month break taking chemo. Who knew chemo would be a relief?

I have had four severe hunger pain break throughs. All in all four days out of fourteen is not that bad I guess. My focus needs to be on the 10 days I managed to keep things a bit on an even keel and be grateful! Now that the steroid is building in my system however, it is more and more difficult. I have learned to really rely on healthy fats, eating an avocado a day and taking fish oil. These and dairy products seem to do a better job stabilizing my appetite than anything else.

On Thursday, for my 10:30 a.m. snack I prepared some yummy fresh pineapple. - BIG mistake!! I have learned that any hit of sugar like that sends me off the deep end. No more pineapple for me when I am in a Prednisone month. I had already completely done away with “refined sugary anything” but the fruit and juice can take their toll too. It is best to have fruit or juice after a good meal with proteins and fats.

The ravenous hunger is truly overwhelming. I tell myself that I have had what I need as far as food but it is impossible to get away from the extreme drive that says I need more to eat. For the most part, I resist but it is genuinely unnerving. The best thing is for me to get out of Dodge and go do something that distracts as best as possible. Worst of all however, are the feelings of frenzy. I feel like my heart is pounding so hard and I feel very jagged. I do not like this at all.

I will set up an appointment with a nutritionist next week to fine tune my efforts to do all I can to promote immune system and kidney health during this reprieve from the assault on the kidneys. I pray Heavenly Father will continue to guide me and the health care providers for the best of chance to beat this. I had my labs this week and will see Dr. Haderlie again on Tuesday. Our third attempt at a high quality Statin drug failed. I just cannot take them. I am now taking Zetia and seem to be managing it quite well. It will not be as effective but it is something.

I was sad to find that my appointment this week coincides with my ward Relief Society's TLC (Temple - Lunch and Conversation.) That is one of my favorite activities of the month. I may be finished at the doctor in time to go and eat lunch with the sisters. If so, I will try to do a session following lunch on my own. The time in the temple gives me such a sense of peace and well being.

The strength of my church family has been one of my best of blessings. The dear women in the ward are so generous and kind. I had two meals loving prepared for Claigh and I this week. Jamie Jensen is a Stew Goddess!! That was so very very good. and Robyn Whitworth made us a wonderful chicken dinner following a very difficult day for her family. Tamara Clark brought LiElle for a sweet visit one afternoon. Tamara had come across a bottle of herb seasoning without even a pinch of salt. She bought it for me. I am overwhelmed with how beautiful and thoughtful these busy young moms are. It just makes my heart smile to see children blessed with such beautiful moms.

The one who bears the greatest burden through this time of trial has to be Claigh. It is he for whom I am most deeply grateful. He continues to amaze me with his patience and goodness. He is mindful of my needs and often sacrifices his own. It isn't easy going through this emotional roller-coaster ride with me. Truly he is my greatest “people” blessing and beyond my deserving. I want to beat this for him!

All in all, I am very grateful to be up and going strong again. Those months where I was so down physically were taking a bit of an emotional toll. I appreciate the strength in my legs to stand and walk and the usual clarity of my thinking again. As for the Prednisone Crazies . . . This too will pass!

Friday, March 4, 2011

Me Again - Update

Thanks for allowing me to update without lengthy explanations over the phone . . . It isn't great to go over and over and over it all verbally :) and writing it allows me to more accurately express the situation. Verbally - moment to moment can shade the overall truth.

Yesterday was tough again but for tough, I must say, I am very blessed. The weakness was overwhelming. Thankfully this does not define my every moment of every day. However, it did mean my hopes for Relief Society last night were dashed. That is the honestly worst aspect of this fight. I am so flaky! I miss people!! I need to get out or burst!!! I constantly deal with weakness but manage very well for the most part. A visit from Steven and Alyssa provided a wonderful respite. I lay on the couch, they play games and laugh and challenge one another. It was good for Claigh to have some game time too.

For the first time since last July, I have two ankles that will fit into any of my shoes. (I have been restricted to one pair of sling Reems for months!) I also am able to pick up my feet and stand stable. Also, the new Stain is not impacting me negatively. I am so grateful to you Marissa for telling me of the need to take CoQ10 while on the Statin. You have made such a positive difference for me. I am thankful for your medical training and know your family and patients are blessed for your diligence.

I am learning to really be in tune with my body processing food. I find that it is unwise to go longer than 2 1/2 hours without eating something good. It may just be a light sodium multi-grain cracker with white cheddar or two OR an avocado but I need to be sure to stay on top of that if I do not want to fade away. I am also discovering how good salt free can taste! Who would have thought? When Dr. Haderlie first told me that he thoroughly enjoyed his eggs with no salt, I couldn't believe it. It is TRUE!! I have learned the real threats that come along with the high sodium intake in America.

When the doctor warned me of the challenges this treatment would bring with appetite, diabetes and irritability, I prayerfully came back to my long time study of health and nutrition. I take two Tablespoons of Nordic Fish Oil each day, an Omega 6 every other day, and usually eat an avocado a day. This healthy fat keeps me satiated and I have had no appetite surge. I also am back to a healthier regard for sweets! I have actually surmised that it is possible the rise in diabetes in America could be related not only to the high consumption of simple carbohydrates but also related to the lack of healthy fats in the diet. In this first completed week of treatment, I have dropped 11 pounds.

I actually began to format this "sweets/fats" line of thinking over the years I saw my father diet and do the "low fat" thing and yet consistently come up against his ever increasing weight. Dad was a strong man with a tremendous will and he was always starving himself to become "healthy." I am confident that the focus on pounds in the obesity battle which rages in our society is the completely wrong focus! I get leery of "way out there" or "extreme" diets as well. Good whole food in line with the Word of Wisdom is truly the way to go!! When we feed our bodies right, they have greatest opportunity to respond with the health and strength we need and we feel satisfied. My girls remember how strong I was against any "fat-free" or "diet" foods coming into my house when I raised them. It is amazing that I allowed myself to get away from this understanding for a time. Mother's give your children whole milk! (unless of course they have lactose intolerance as one of mine did :D)

I take my Calcium/D/Magnesium spread out over my three main meals. I am confident this aides in satiety as well as irritability issues.

More on the irritability and sleep issues - Of course you are going to be irritable if you are not sleeping. It is a fact that while on these high doses of steroids, if I do not do something, I will not sleep. (I had only 3 hours of sleep during the first 36 hours of treatment.) Dr. Haderlie prescribed a narcotic sleeping pill for me. I filled the prescription for "just in case" but as I read through the realities of that particular medication, I decided to follow his other suggestion that I might try an over the counter medication. I prayerfully decided to give Unisom a try. I use the Unisom that is safe for pregnant women. - Success - AND not as harsh on my body. I am constantly thankful for the guidance of the spirit in these decisions. Those of you who know me best, know I am NOT about taking pills. This decision has been quite the departure for me but the right way to go. I sleep. I do not feel tension. I am not teary.

Tamara - the fish dinner was absolutely delicious! I must get your salsa recipe. I have felt so badly to have any of you bring me food. Claigh and I can manage very well as it is just the two of us. Your offers are beyond generous but most important to me personally has been the kindness and love that you have shared. It has also been wonderful for Claigh to end a very full day with something loving prepared that is nutritious and tasty.

I enjoyed hearing your voice yesterday Sylvia and having a good laugh. Jean, your thoughtful check-ins are so very appreciated and the creamed peas & potatoes really hit the spot. To my beautiful daughters - What can I say. - I am a very blessed mom.

Kevin - Thanks for the thoughtful email. I agree. That being said, for now this treatment is right. It is giving me time. Further damage is stopped and I have time to do the study and implement efforts necessary to give myself the best possible outcome. This treatment is not a cure but it has the best record of success in giving a person's body the opportunity to right itself (30% chance.) I am going to continue to study, pray and do all in my power to follow the Spirit by providing my body with all it needs to recover full health.

I have dreams of a great future on this earth, teaching and loving children around the world. People are my passion. I love to teach. I am confident the Lord is mindful of me and will use me to His best advantage if I am willing to follow whatever path he leads me down. I pray to do my best and leave to God the rest.

Saturday, February 26, 2011

A Sadness . . .

I received my formal release from the temple this week. This is a bit hard to take but the reality is that with every thing considered, it was very difficult to be reliable on such a stringent and demanding schedule. The biggest challenge for me emotionally is the loss of activity. I am still able to attend the temple every week with some of my Relief Society Sisters.

My stake music calling is such a blessing for me. I have many good hours to work at my snail pace and with this calling I can go to it when I have strength and energy. When needed, I can be sure to set things up to protect the energy needed. This week and last of course have been exceptions to that with the downturn and start of the new treatments but Dr. Haderlie has assured me I will feel pretty good during the chemo months and there are things I can do to manage the challenges of the steroid months. I have hope.

Friday, February 25, 2011

The Fire Saga, Impact on a Loving Spouse and Miracles . . .

Prior to Steriod/Chemo treatments:

What a deal! When I was on Lipitor, I was suffering from some poor thinking and weakened muscles. It took a bit to realize it was the Lipitor that was causing it. I was heating coconut oil to make some Navajo Taco Fry Bread. (It shouldn't have been that difficult to be safe!)

1st mistake: I left the lid on the pan.

2nd mistake: I walked away and forgot it.

3rd mistake: when I came back to the kitchen and saw the steam pouring out from under the lid, I removed the lid!

I know better!!

The flames were shooting 4 - 5 feet into the air and were in the way of the cup board where I keep the baking soda. Claigh was napping on the couch in the front room. I yelled for him and he ran in, picking up the pan and heading for the door. He had only stockings on his feet. When he got to the door, he had to unlock it with one hand, holding the pan with the other. He tipped the pan slightly spilling some of the hot grease on the living room carpet and redirecting the flames so that the inside of his index finger was badly burned. I was shuffling behind him (very weak and insecure legs) with the baking soda. He got the pan outside. Shortly afterward I caught up with the soda. Our hood/microwave took a beating and there was some slight damage to the cupboard above it.

We feel very blessed that Claigh did not burn his feet or legs. We feel very blessed that we did not set the whole house on fire! We feel very blessed that Claigh's finger has healed nicely with the help of the doctor and friends.

Lessons learned: Do not make Fry Bread when you are not able to be on top of your game mentally. Do not have the baking soda in a cupboard that could be blocked by flames. Have a fire extinguisher under the sink ready to go.

The added stress of my illness has taken a toll on Claigh. He has had a battle with his second case of shingles. His first shingles experience was over 25 years ago in Missouri.

What a painful and debilitating attack! Thankfully Claigh was early to recognize the symptoms and was into the doctor for an immediate anti-viral. This weakened the severity of the attack although he did miss a full week of work. Perhaps this provided a very needed rest from work but I am not confident the pain involved is worth it at all.

Have I ever mentioned how I love the temple? When in the temple with a friend, on Claigh's worst week, a simple thought entered my mind. It was brief and quick but thankfully the quiet and peace of the moment let me hear clearly.

A few days earlier, friends had recommended that we add oil of lavender to the regime of treatments for Claigh's burn. His finger was well on the way to healing but he needed some help regaining suppleness to the skin. Lavender oil is calming and so why not? (The price of lavender oil is not so calming.) The progress of the heal quickened noticeably.

Back to the temple, "Claigh needs to use the lavender oil on his shingles." That was it. Quick. Unrelated to anything else that was happening. But clear.

Claigh's pain from the shingles was just really working up to a fury at that time. He had just received a powerful medication for nerve end pain that was taking a toll on his functionality. When I came home and told him I felt we needed to use the oil on his shingles, he immediately felt it was a right idea.

Honestly - the answer to prayers is an amazing testament that we are loved by a perfect Father. Claigh had only taken one of the vamped up pain medications. The lavender oil soothed and managed the rest. He was back to work the following Monday.

Through it all, we are blessed!

Thursday, February 24, 2011

Forward . . .

I'm with you Harry on the natural health solutions but in this case I am very thankful for the miracles of modern medicine. This is an auto-immune disorder and is very dangerous. My Dr. and I have tried less intensive solutions but things have progressively worsened in spite of our best efforts. Now is the time to really hit hard. I have hope that I will fall into the 30% who have complete remission. The bad news - my protein loss and cholesterol are way over the critical levels. (high risk protein loss is 8 grams - I am over 16 grams, my cholesterol is over 550 and climbing with 444 of that LDL. My triglycerides are 116 as well - Whew!) The good news, Dr. Haderlie says I am so healthy in all other respects that it is very unusual for someone with such a serious disorder. This is due to my taking such good care of myself physically over the years.

My thinking is clearer now that I am off of the two Statins that caused me trouble and led to the fire incident. Claigh's burn has healed nicely and he has overcome the worst of the shingles he was battling. I have to start a new statin next week in hopes of getting the cholesterol under control a bit. Non-flushing Niacin didn't do a thing for me. As I said the liver challenges are not related to diet but are a direct result of the immune system attack on my kidneys. We are hopeful I can tolerate this statin without muscle loss and mental confusion.

I had a great afternoon yesterday followed by a very difficult night and tough morning this morning. I struggled with a severe headache and bright-eyed sleeplessness. Tonight I will take a sleep aid - for me that is huge as I have an aversion to medicating myself but it is necessary if I want to keep my sanity.

The nurses at the infusion lab are wonderful. I am so thankful. It was recommended that I try Pepsi or Coke for the caffeine to combat headaches. OUCH! I have decided that instead of that I will do caffeinated Green Tea. Green Tea is great for kidneys and I have been using decaf for a while. By going this route, I will get the caffeine but not have the sugar/carbonation hit I would from the sodas. I could hardly raise my head with the pain this morning. I pray for inspiration as to the best solutions with the fewest side effects. My stomach has already been feeling the stress of the medications.

Carol was kind to get me to and from the hospital. That was a smart choice. I really wasn't fit for driving. What would I do without such good souls who are so willing to help out.

This afternoon is better again. I have managed the laundry and ironing. (Claigh's 7 white shirts a week habit over the years keeps me busy :D) It feels so good to get some things done. It does something positive for my psyche when I can work a bit. Claigh will do the grocery shopping on his way home from work tonight. Another friend is bringing dinner. I really appreciate this as it gives Claigh something tasty at the end of a very busy work days.

I missed you Alyssa and hope you get over your bug soon. I am still hoping to be strong enough Saturday to share the Julie Beck address with you.

Wednesday, February 23, 2011

Progress?

Thanks for the yummy chicken and baked potato Jean and Gary! Just right!! It was so kind and very appreciated. Thanks for the flowers JoAnn and Terry. You are two of the dearest souls! AND an especially heartfelt thanks for all of your prayers and concern. I am so blessed and grateful.

I had mixed things up a bit. There was just too much information to keep it all straight. The infusion today was a steroid, Solumedrol. This will continue with 1000 mg IV daily for each of the initial three days. I will then start on high dose Prednisone by mouth for thirty days followed by thirty days of a chemo treatment, Cytoxan followed by thirty days of Prednisone etc. This will continue for six months with hopes that I will see results by then. The longest they can take this treatment is one year. I have a 30% chance of by body throwing off this assault against my kidneys.

Following the treatment at the hospital, I still felt lousy but good enough to pick up prescriptions and the very needed Peppermints at the drug store. I also got crab SUBWAY. This afternoon was a bit rough as I experienced extreme fatigue. The metalic taste in my mouth from the treatment is AWFUL! I had hoped it would go away but alas it seems it will be a part of my life for the next few days. Thank-goodness for Reed's Extra Ginger Ginger Beer and Cherry Ginger-Ale. Doublemint Gun seems to distract me for a while too.

While the last four days were quite rough and this morning started out very tough, when I came out of my deep sleep again at 4:00 this afternoon, I felt better than I have for a week. I still have a slight headache and the nasty taste but I have strength in my legs again and clear thinking. My right ankle is normal and the left one smaller than it has been in months. That IV carried a powerful punch. It makes me hopeful. I am sorry for rambling - so much to process.

My friend Carol Stewart will get me to and from the hospital the next two days. Thanks for your generous and kind willingness to help me Carol. I did well today, but with all of the new medications starting today, the warnings are that I should give some time to see my reactions before I drive. I believe in responding to cautions. I don't want to be undone on the road even if it is just a short 5 minute drive.

Love to you all, Mom/Wendy

Tuesday, February 22, 2011

Tough News For Me This Week . . .

This past week has been a bit overwhelming for me. I knew what was coming but held out hope that it wouldn't be.

The day after I had my labs done, the doctor's office staff called me with alarm. My cholesterol was 550 (444 of that LDL.) I had a very severe reaction to the Statin I was on and had to be taken off of it. I have reacted badly to the second Statin as well. We are going to try a third as Dr. Haderlie is afraid I will suffer heart damage on top of all the kidney and liver trouble I am in. If this Statin doesn't work we will have to try something less effective in managing the cholesterol. The cholesterol is a direct result of the kidney challenges I am having - not at all related to diet.

Also, my protein loss remains very high. While I have felt better as a result of the medication, there is no improvement - only decline in my ability to process protein and provide what is needed to my blood.

This morning Dr. Haderlie told me we are out of easy options and it was time to pull out the heavy artillery. While we had hoped to give the efforts we were making until the end of March, it is critical that the time table be moved up. (I am so sorry Sara.) I left the office with many cautions and warnings and seven prescriptions. I will be on a schedule rotating between a month of Chemo Therapy and a month of very heavy steroid treatments. We had hoped to avoid this as these treatments bring some pretty heavy risks and yet to do nothing would be worse.

The Chemo I will have is not the same as the one used for say Lung Cancer. I will probably actually feel pretty good the months I am on Chemo. I will not loose my hair. If I did not tell you, you would not even know I was having Chemo. Dr. Haderile said the big risk is that it will shut down my immune system. (My problem is that my immune system is attacking my kidneys and if left unchecked, it will kill them.) We want to stop this attack while I still have good kidneys to save. He also stressed that while I am in this treatment program, I will have to be extra cautious staying away from any one with the slightest cold or infection. He said he knew this would impact the contact I would be able to have with grandchildren but it would be important that we all take things very seriously. Church attendance will be Okay but again I will need to be extra careful and trust others to be mindful as well.

The high doses of steroids are going to be a big challenge. The harshest of the steroids are the ones that have proven successful in battling this illness. I will have a ravenous appetite and could be challenged with more weight gain. He said if I am mindful of this, I can monitor my eating by watching the calories. The natural feeling of "being full" will not help because the steroids interfere with that signal. Even with the care I take with my eating, I will get very puffy.

Dr. Haderlie had so much to say, I am really overwhelmed. On these other side affects, I can't remember which are caused by the Chemo and which are caused by the steroids:

1. I will be at a higher risk for developing diabetes. This is a shock as heredity already puts me at a very high risk. I "think" this is related to the steroids. On the months I take the steroids, I should be extra careful diet wise as far as sugars go. I will have to clarify with the doctor if it is the steroid months or the chemo months that this applies.

2. The treatments put me at a higher risk of developing cancer.

3. My bones are going to take a hit. I will need to be on double the recommended doses of Vitamin D and Calcium to try and counteract the impact of the treatments.

4. The lining of my stomach will take a hit. I now have a prescription for an acid medication to counteract that.

5. I could suffer with insomnia. I have a prescription for sleep medication if that becomes an issue.

Because of all of the risks involved, I will now have the blood & urine tests and see the doctor every three weeks instead of six. Dr. Haderlie also gave me his cell phone number so that I could reach him at all times. I can't say enough how confident I feel in his care and ability to give me the best chance I can have.

Dr. Haderlie is hopeful we will see some positive results in six months. At that time we will re-evaluate. The longest we can utilize this treatment plan is one year. Because of the risk factors, shorter is better.

I don't know why this is my life at this point but I do trust in my Father in Heaven's love. I feel so blessed to know and understand The Plan of Salvation. I am confident that there is great purpose in this life and trust that I am clay in the hands of the potter. The sadness I have felt the last couple of days as I have come to terms with what was coming will not get me down! I am in the process of taking a deep breath and allowing myself to be comforted by the power and warmth of the Holy Ghost. Those of you who know me best know that for me control is a very big deal. I think it is an especial challenge for those whose childhoods are out of control. I have to let go and trust God in a way almost as great as I have had to do as a mother and that is big.

I am also very aware that there are many whose struggles are much greater than mine. This is life! We each have our share of blessings and challenges that is for sure.

Please keep Claigh in your prayers as well. I am very aware of the challenge this is for him. We had other plans for our lives at this time. Our hopes for missions after retirement are still there but who knows the way things will go.

There are things I can't control but I am determined to do all that I can to regain full health God willing. I look back over my life and marvel at His hand in my life all along the way. Forward and onward!

Tuesday, January 4, 2011

Aly and Steven's First Home

After a delay in Rawlings, Wyoming due to the closing of I-80, Alyssa and Steven arrived in Idaho safely Friday. They had hoped to make it to Soda Springs in time to celebrate Bryn's 11th birthday and thankfully they did. After a birthday dinner with Ash and Steve and Sara and Jared's families, they made their way to us in Idaho Falls.

After catching their breath a bit, opening wedding gifts, apartment contract review, visiting, unpacking and repacking, and renting a U-Haul, things were in place for their move into their first home.

Tuesday dawned a bitter -14 degrees. Steven made his way to Rexburg for an early morning work meeting while Alyssa and I began the process of washing all of her dishes and linens so that things would be ready to go straight into their cupboards.

I had begun the day fasting for blood work which unfortunately took a bit out of me. By 10:30 a.m. I ran out of steam and was down for the rest of the day. However, with the early morning efforts, Alyssa and I were almost at the end of the 3 dishwasher loads, 2 dish drainer hand washed loads and three loads of laundry by that time. Alyssa kept at it and had everything ready to go when Claigh and Steven picked up the U-Haul at 1:00 p.m. (The temperature had warmed up to a balmy 4 degrees by then.)

The Sevy's are now official residents of Rexburg, Idaho and we couldn't be happier for them. The generosity of so many dear friends and family has helped this young couple in their start to new family life. Their apartment is sparsely furnished and yet filled with not only their love for one another but the love of so many whose gifts contributed to the setting up of their new home. Surely the love of God is reflected in the loving kindness of His people. We are so very grateful.